Individuals living with Parkinson’s disease in Ghana have made a heartfelt appeal for support, shedding light on the challenges they face beyond battling the physical symptoms of the illness.
The patients are also fighting against the stigma that often comes with the condition.
Parkinson’s disease, a neurodegenerative disorder that affects movement, currently impacts over 10 million people worldwide, with numbers expected to increase as populations age. Despite its prevalence, misconceptions and stigma surrounding the disease persist, leading to social isolation and discrimination for those living with it.
Sarah, a 63-year-old Parkinson’s patient in Sogakope, shared, “I often feel like people don’t see me anymore. There’s this assumption that because I have Parkinson’s, I can’t contribute or participate like I used to.” Many others in the Parkinson’s community echo this sentiment, feeling devalued and misunderstood due to misconceptions about the disease.
The stigma surrounding Parkinson’s not only affects interpersonal relationships but also impacts access to employment, healthcare, and community participation. Patients report feeling hesitant to disclose their diagnosis out of fear of discrimination or pity, leading to increased feelings of isolation and loneliness.
Experts emphasize the urgent need for greater awareness and support to address the stigma associated with Parkinson’s disease.
Education campaigns, advocacy efforts, and initiatives to promote inclusivity and understanding are crucial steps toward creating a more supportive environment for patients.
In response to the appeal from Parkinson’s patients, Member of Parliament for North Tongu, Samuel Okudzeto Ablakwa, is advocating for increased funding for research, improved access to healthcare services, and comprehensive support programs tailored to the unique needs of individuals with Parkinson’s.
“As a society, we must do better in supporting those living with Parkinson’s disease,” urges Samuel Ablakwa Okudzeto. “It’s time to stand together and end the stigma, ensuring that every individual is valued and respected, regardless of their health condition.”
